For Parents and Carers
Welcome to the FASD Trust website home page for parents and carers of FASD-affected children. As several of us are
parents of children with FASD, we share and understand your daily
tears, smiles, frustrations and joys!
One of our main aims as a
charity is to continue to increase awareness of FASD thereby making
your lives easier, as people begin to understand the condition and,
hopefully, you will find yourself gradually having to explain less
and less what FASD is!
We hope that you will
find lots of helpful and useful information in these web pages, but
come to our regional support group events - for more information, please click the Support Group tab on the left.
The number of groups around the country is now in double figures, and that number is increasing so there is probably now a group
established near you! And, if there is not ...
Talk with us about how
to set up a group!
out our on-line forum which is simply for parents & carers:
Come along to one of our training workshops for Parents and Carers - check News and Events for details of forthcoming events.
Ask us to send you a
copy of our latest Newsletter
will soon have a full list of our resources available, for example,
we have workbooks for children explaining FASD, a Parenting book, our App ("My Name is Sam") explaining to children what FASD is all about, a guide for teachers on educating the FASD child –
e-mail Sue at firstname.lastname@example.org
for details, or to download the Android or iPhone versions of the App, click here.Check News and Events regularly for news and updates for our resources.
our office or contact us by email with any queries or suggestions; we are always looking to
improve our services to you. General inquiries should be sent
and to contact Ruth, our Family Support Administrator, email her on
we are always willing to travel to your locality and give training /
information sessions at your child's school, place of worship or even
in your workplace; we can also signpost you to other organisations
whom we work with to give you further information or assistance.
major problem faced by many of you as parents and carers of FASD
children is getting an early and authoritative medical diagnosis. The Trust
is very well aware of this all-too-common problem and is working
strenuously with leading medical researchers and practitioners to
help medical professionals understand and recognize the condition, in
all its many and diverse forms. We held a very successful two-day
training conference for medical professionals in Witney in October
2011, which served as the springboard for the launch of our Forum for Medical & Healthcare
We are now setting up a forum for teachers and other professionals in the Education sector (its home page on this site is For Education Professionals) and are planning to launch a forum for professional people engaged in Social Work. Through these forums, we
believe that, working together, we can improve the situation.
Though the material on the Professionals web pages on this site is intended primarily for the respective groups of professional workers (doctors, medical researchers, nurses, teachers, social workers etc.), you are very welcome to visit the Professionals pages (through the above links), to see how FASD-related issues appear from their perspectives. [Please note that, because of issues of client confidentiality, access to the Forums, which are housed separately from the webpages, is restricted to accredited professionals who have registered to join the appropriate Forum]
are also working in partnership with a number of other organisations,
with whom we have shared aims. By working together, sharing expertise
and information, each organisation stands a better chance of
realising its particular objectives. For more details of our
partners, take a look at Partners.
To carry forward all the strands of our work, and in
particular to provide effective and timely support to families
affected by FASD, the income that we need comes entirely from
fund-raising efforts and donations. Please take a look at the Donations and Fund Raising page to see the ways in which you might be able to help or sign up to
be a Friend of the Trust, as even just £2 per month makes a
major contribution to our work.
Simon & Julia Brown - Joint Chief Executive Officers, and The FASD Trust Team